I'm back off to the Alfred for Transplant Clinic tomorrow.
Things have remained fairly stable over the last twelve months until now. I've noticed a slight deterioration over the last couple of months, and the Physiotherapists at Pulmonary Rehab have noticed it too.
At rest, everything seems to be the same, but as soon as I do anything - even something as small as standing up, my oxygen sats start to drop faster than normal, and my heart rate starts to increase faster than normal.
After the walk section of pulmonary rehab, my sats are now around 72%, and my heart rate is around 130.
I've noticed the difference around the house too. I have to keep stopping and sitting down when I'm doing stuff, and I have to turn the oxygen up to have a shower comfortably.
I'm not quite sure what to think about it all yet. Sometimes it's better not to!